Table 6 Impact on the social life of participants and their expectations of others
Sub-categories | Time | Quote |
|---|---|---|
Restrictions in social life and work | 6 Weeks | “Yesterday, when I was on the bus, I felt that there was always phlegm in my throat. I coughed all the time and then put the phlegm in a paper towel. I didn’t want people to look at me. I felt like I had an infectious disease.” (P9) |
6 Months | “I used to go to bed at 9:00 pm on time, but now I dare not go to bed because of fear of suffocation, which completely breaks my living habits.” (P8) | |
Changes in intimacy with family | 6 Weeks | “I used to live alone. My parents were worried about my situation, so they let me live with them.” (P7) |
7 Days | “I’m tired of talking. Recently, my family didn’t call me for fear of affecting my rest, but I really didn’t want to answer the phone.” (P16) | |
Lack of professional support from medical staff | 7 Days | “I left the hospital immediately. Although my hands were not numb, I still had difficulty eating. I live far away. What should I do then.” (P19) |
6 Weeks | “When I was in hospital, every time I asked the medical staff, they said that it would be better in a few days. Now it has been more than a month, and my problem still hasn’t been solved.” (P9) “I hope you can give me some advice on nutrition. After all, I can’t eat much…How to eat is very important for my health.” (P18) | |
6 Months | “After I left the hospital, I felt abandoned. Except this time when you called me, no one told me how to deal with the problem of swallowing.” (P17) “I stayed in the local hospital for eight days after I was discharged from your hospital. I can’t eat. I’m afraid I can’t recuperate well when I go back.” (P15) “I have also checked this situation on the Internet, but after all, I don’t believe anything online. I believe what you tell me, so I hope you can give me more information about rehabilitation.” (P12) |