Barrier PE-level | Intermediate PE-level | Facilitating PE-level | |||
---|---|---|---|---|---|
Domain/ Itema,b | Strongly disagree/disagree n (%) | Neither agree nor disagree n (%) | Agree/strongly agree n (%) | Don’t know n (%) | |
Policies and practices c | |||||
6 | Explicit strategy for PEd | 4 (8) | 5 (11) | 37 (79) | 1 (2) |
7 | Explicit strategies for recruiting participants | 5 (11) | 13 (28) | 28 (59) | 1 (2) |
8 | Identified resources for PE | 5 (11) | 9 (19) | 20 (42) | 13 (28) |
9 | Adequate PE resources | 10 (21) | 9 (19) | 18 (39) | 10 (21) |
10 | Prepares reports of PE | 9 (19) | 12 (26) | 22 (46) | 4 (9) |
Total n (%) | 33 (14) | 48 (20) | 125 (53) | 29 (13) | |
Participatory culture e, f | |||||
12 | Commitment to PE in key organisational documents | 2 (4) | 6 (13) | 35 (74) | 4 (9) |
13 | Commitment to PE through structure | 8 (17) | 11 (23) | 25 (53) | 3 (7) |
15 | Clear responsibilities for PABg | 6 (13) | 8 (17) | 31 (66) | 2 (4) |
16 | Responsibilities in job descriptions of relevant staff | 4 (9) | 9 (19) | 16 (34) | 18 (38) |
17 | Comprehensive PE training/materials to support staff | 11 (23) | 10 (21) | 14 (30) | 12 (26) |
18 | Adequate PE training | 7 (15) | 13 (28) | 27 (57) | 0 (0) |
19 | Leaders show commitment to using PE input | 3 (7) | 10 (21) | 33 (70) | 1 (2) |
20 | Reports of contribution from PE shared with participants | 5 (11) | 17 (36) | 18 (38) | 7 (15) |
Total n (%) | 46 (12) | 84 (22) | 199 (53) | 47 (13) | |
Influence and impacth | Never | Rarely/some of the time | All of the time | Don’t know | |
22 | PE contributions are identifiable | 0 (0) | 28 (60) | 11 (23) | 8 (17) |
23 | Leaders use input from PAB | 0 (0) | 25 (53) | 13 (28) | 9 (19) |
24 | Patient representatives are equal to employees in meetings | 4 (9) | 11 (23) | 29 (62) | 3 (6) |
25 | PAB representatives have voting rights in meetings with employees | 7 (15) | 10 (21) | 13 (28) | 17 (36) |
26 | Instances where PAB input had an influence | 1 (2) | 30 (64) | 4 (9) | 12 (25) |
27 | Instances where PAB input influenced management decisions | 1 (2) | 21 (45) | 2 (4) | 23 (49) |
Total n (%) | 13 (5) | 125 (45) | 72 (25) | 72 (25) | |
Collaboration and common purpose | Strongly disagree/disagree | Neither agree nor disagree | Agree/strongly agree | Don’t know | |
29 | PE led to collaboration with other groups | 5 (11) | 10 (21) | 19 (40) | 13 (28) |
30 | PE led to identifying shared goals with other organisations | 1 (2) | 16 (34) | 14 (30) | 16 (34) |
Total n (%) | 6 (6) | 26 (28) | 33 (35) | 29 (31) | |
Final thoughts | Strongly disagree/disagree | Neither agree nor disagree | Agree/ strongly agree | ||
32 | Appropriate level of engagement activity | 9 (19) | 12 (26) | 26 (55) | |
33 | Appropriate level of resources to PE activity | 14 (30) | 10 (21) | 23 (49) | |
34 | The organisation is strengthened as a result of PE | 1 (2) | 6 (13) | 40 (85) | |
Total n (%) | 24 (17) | 28 (20) | 89 (63) |