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Table 1 Characteristics of the interviewed and the focus group patient population

From: Patients’ views and needs about systemic sclerosis and its management: a qualitative interview study

Semi-interviewed patient population

Feature

Composition of study population (n = 16)

Gender

- 12 females

Age

- 6 patients <50 years

- 5 patients 50–65 years

- 5 patients >65 years

Current work status

- 3 working

- 4 non-working (1 patient on sick leave for 1 year and 3 disabled patients)

- 9 retired patients

Place of living

- 13 urban

- 3 rural

Disease manifestationsa

- 4 patients with PAH

- 4 patients with DU

- 8 patients with other type of organ involvement

Focus group patient population

Feature

Composition of study population (n = 9)

Gender

- 9 females

Age

- 4 patients <50 years

- 4 patients 50–65 years

- 1 patients >65 years

Current work status

- 4 working

- 4 non –working (2 patients on sick leave and 2 disabled patients)

- 1 retired

Household members

- 3 persons living alone

- 4 cohabiting or married (2 with children)

- 1 living with brother

- 1 living with her student daughter and her daughter’s companion

  1. PAH pulmonary arterial hypertension, DU digital ulcer
  2. adeclared by the patient interviewed