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Table 2 Model of SMS needs [17]

From: What support is needed to self-manage a rheumatic disorder: a qualitative study

Themes Subthemes Quotations to explain the modela
Relational support refers to supporting aspects of interactions with other persons. This involves two subthemes: partnership, and sympathy. Partnership “It is not possible to hold professionals responsible for everything. It ought to be a matter of co-operation. Every patient should consider what is good for him of her” (II-R5)
Sympathy Patients highly appreciate when their symptoms and side effects are taken seriously: “Action was taken immediately. In a few days I felt better. I was really accepted” (FG2-R3)
Instrumental support is related to the medical management of a chronic condition, This involves three subthemes: Knowledge–information and instruction, internalizing knowledge, and adjusting daily life. Knowledge–information and instruction “For example, I want information about what can happen if I do not wish to be operated on my hand” (FG2-R4)
Internalizing knowledge Having the opportunity to discuss disease-related information: “I calm down when a nurse tells me how to interpret side effects I’ve noticed” (II-R4)
Adjusting daily life “I liked to get advice on how to deal with a rheumatic disorder in daily life. To hear that on the one day you’re capable of house cleaning and the next day you’re not” (FG1-R2)
Psychosocial support pertains to the resources needed to manage the emotional and psychosocial aspects in living with a chronic condition. This involves two subthemes: recognition of emotional aspects of the chronic condition, and building self-confidence and empowerment. Recognition of emotional aspects of the chronic condition “Just ventilating [my emotions or feelings] is enough” (II-R3)
Building self-confidence and empowerment “For me, it was a psychological transition to inject myself. First, the nurse showed me how to administer this medication. Then she instructed me stepwise. Afterwards I felt confident enough do it myself” (II-R3)
  1. a Quotations were derived from the focus group (FGI) and individual interviews (II)