Table 2 Model of SMS needs [17]

Relational support refers to supporting aspects of interactions with other persons. This involves two subthemes: partnership, and sympathy.

Partnership

“It is not possible to hold professionals responsible for everything. It ought to be a matter of co-operation. Every patient should consider what is good for him of her” (II-R5)

Sympathy

Patients highly appreciate when their symptoms and side effects are taken seriously: “Action was taken immediately. In a few days I felt better. I was really accepted” (FG2-R3)

Instrumental support is related to the medical management of a chronic condition, This involves three subthemes: Knowledge–information and instruction, internalizing knowledge, and adjusting daily life.

Knowledge–information and instruction

“For example, I want information about what can happen if I do not wish to be operated on my hand” (FG2-R4)

Internalizing knowledge

Having the opportunity to discuss disease-related information: “I calm down when a nurse tells me how to interpret side effects I’ve noticed” (II-R4)

Adjusting daily life

“I liked to get advice on how to deal with a rheumatic disorder in daily life. To hear that on the one day you’re capable of house cleaning and the next day you’re not” (FG1-R2)

Psychosocial support pertains to the resources needed to manage the emotional and psychosocial aspects in living with a chronic condition. This involves two subthemes: recognition of emotional aspects of the chronic condition, and building self-confidence and empowerment.

Recognition of emotional aspects of the chronic condition

“Just ventilating [my emotions or feelings] is enough” (II-R3)

Building self-confidence and empowerment

“For me, it was a psychological transition to inject myself. First, the nurse showed me how to administer this medication. Then she instructed me stepwise. Afterwards I felt confident enough do it myself” (II-R3)