Skip to main content

Table 3 Endorsement frequencies and completeness of ISMI-RA items

From: Internalised stigma in people with rheumatoid arthritis: a cross sectional study to establish the psychometric properties of the ISMI-RA

ISMI-RA item Response n (%)
I feel out of place in the world because I have RA Disagree 60 (60.0)
Agree 40 (40.0)
Missing 0
People discriminate against me because I have RA Disagree 80 (80.0)
Agree 20 (20.0)
Missing 0
I avoid getting close to people who don’t have RA to avoid rejection Disagree 77 (77.0)
Agree 23 (23.0)
Missing 0
I am embarrassed or ashamed that I have RA Disagree 44 (44.0)
Agree 56 (56.0)
Missing 0
People with RA should not get married Disagree 100 (100.0)
Agree 0
Missing 0
People with RA make important contributions to society Disagree 14 (14.0)
Agree 86 (86.0)
Missing 0
People with RA make important contributions to society Disagree 14 (14.0)
Agree 86 (86.0)
Missing 0
I feel inferior to others who don’t have RA Disagree 48 (48.0)
Agree 52 (52.0)
Missing 0
I do not socialize as much as I used to because my RA might make me look or behave in a “strange” way Disagree 69 (69.0)
Agree 31 (31.0)
Missing 0
People with RA cannot live a good, rewarding life Disagree 80 (80.0)
Agree 20 (20.0)
Missing 0
Negative stereotypes against people with RA like myself keep me isolated from the “normal” world Disagree 81(81.0)
Agree 19 (19.0)
Missing 0
Being around people who do not have RA makes me feel out of place or inadequate Disagree 49 (49.0)
Agree 51 (51.0)
Missing 0
I feel comfortable being seen in public who obviously has RA Disagree 13 (49.0)
Agree 87 (87.0)
Missing 0
People often patronise me, or treat me like a child, just because I have RA Disagree 84 (84.0)
Agree 16 (16.0)
Missing 0
I am disappointed in myself for having RA Disagree 33 (33.0)
Agree 67 (67.0)
Missing 0
Having RA has spoiled my life Disagree 51 (51.0)
Agree 49 (49.0)
Missing 0
People can tell that I have RA by the way I look Disagree 48 (48.5)
Agree 51 (51.5)
Missing 1
Because I have RA, I need others to make most decisions for me Disagree 97 (97.0)
Agree 3 (3.0)
Missing 0
I stay away from social situations in order to protect my family or friends from embarrassment Disagree 74 (74.0)
Agree 26 (26.0)
Missing 0
People without RA could not possibly understand me Disagree 23 (23.0)
Agree 77 (77.0)
Missing 0
People ignore me or take me less seriously just because I have RA Disagree 89 (89.0)
Agree 11 (11.0)
Missing 0
I cannot contribute anything to society because I have RA Disagree 82 (82.0)
Agree 18 (18.0)
Missing 0
Living with RA has made me a tough survivor Disagree 58 (58.0)
Agree 42 (42.0)
Missing 0
Nobody would be interested in getting close to me because I have RA Disagree 91 (91.0)
Agree 9 (9.0)
Missing 0
In general, I am able to live life the way I want to Disagree 29 (29.0)
Agree 71 (71.0)
Missing 0
I can have a good, fulfilling life, despite my RA Disagree 23 (29.0)
Agree 77 (77.0)
Missing 0
Others think that I cannot achieve much in life because I have RA Disagree 85 (85.9)
Agree 14 (14.1)
Missing 1
Stereotypes about RA apply to me Disagree 87 (87.0)
Agree 13 (13.0)
Missing 0
I don’t talk about myself much because I don’t want to burden others with my RA Disagree 77 (77.0)
Agree 23 (23.0)
Missing 0