Outcome | Method | Data*source | At baseline | At 6 months | At 12 months | At 18 months |
---|---|---|---|---|---|---|
Functional outcomes | ||||||
Mobility | Short Form-36 Health Survey (SF-36): subscale on physical functioning [34, 35] | Q | x | x | x | x |
Participation | Keele Assessment of Participation (KAP). Person-perceived, performance based participation [37] | Q | x | x | x | x |
Functional independence | Katz Index of independence in activities of daily living (KATZ) [36] | Q | x | x | x | x |
Quality of life | Ā | Ā | Ā | Ā | Ā | Ā |
QoL | One item of the SF-36. Cantril's self anchoring ladder [38] | Q | x | x | x | x |
Possible predictors of functioning and QoL | ||||||
Pain | Chronic Pain Grade (CPG), domains on pain intensity and disability [47] Items measuring frequency, duration and intensity of pain [48] | Q | x | x | x | x |
Comorbidity | Presence of various illness (yes/no) | Q | x | Ā | x | Ā |
Physical performance | Short Physical Performance Battery Score: balance (tandem stance), timed 6 m walk, 5x chair stands [49] | P | x | Ā | Ā | Ā |
Frailty | Unintentional weight loss: Based on BMI [50] | P | x | Ā | Ā | Ā |
Ā | Exhaustion: One item from the SF-36 ("how much of the time in the past 4 weeks did you have a lot of energy?") [50] | Q | x | Ā | Ā | Ā |
Ā | Weakness: Measuring grip strength [51] | P | x | Ā | Ā | Ā |
Ā | Slowness: Measuring walking speed [51] | P | x | Ā | Ā | Ā |
Ā | Low physical activity: Physical Activity Scale for the Elderly (PASE) [50, 52, 53] | Q | x | Ā | Ā | Ā |
Utility | EQ-5D+c. Measures health outcome: mobility self-care, usual activities, pain, anxiety/depression and cognition [54] | Q | x | Ā | x | Ā |
Functional status | Short Form-36 Health Survey: domains on physical functioning, social functioning and role limitations [35] | Q | x | x | x | x |
Well being | Short Form-36 Health Survey: domains on mental health, vitality and pain [35] | Q | x | x | x | x |
Overall health | Short Form-36 Health Survey: domains on general health perception and health change [35] | Q | x | x | x | x |
Anxiety and depression | Hospital Anxiety and Depression Scale (HADS) [55] | Q | x | x | x | x |
Personal control | Brief Illness Perception Questionnaire (B-IPQ) [56] | Q | x | x | x | x |
Coping with pain | Q | x | x | x | x | |
Ā | Pain Coping Inventory (PCI): subscale resting (5 items) [59] | Q | x | x | x | x |
Self-efficacy | Arthritis Self Efficacy Scale (ASES) [60] | Q | x | x | x | x |
Mobility outside the home | Access to material goods and services (car, public transport, GP, chemist, internet) and living environment, residential. | Q | x | Ā | Ā | Ā |
Social isolation and perceived social support | Social Support Scale (SOS) [61] | Q | x | Ā | Ā | Ā |
Body Mass Index | Based on height and weight, measured by a standardized protocol | P | x | Ā | Ā | Ā |
Falls | Items on past falls | Ā | Ā | Ā | Ā | Ā |
Life style factors | Items on smoking behaviour and alcohol consumption | Q | x | Ā | Ā | Ā |
Sociodemographic characteristics | Age, gender, ethnicity, living arrangements, ZIP code, marital status, education, employment status | Q | x | Ā | x | Ā |
Health care utilization and health care needs | ||||||
General health care use | 6-items(yes/no): hospital admissions, unplanned GP visits, homecare, temporary admission nursing or care home, day care and day treatment | Q | x | Ā | x | Ā |
Health care use for joint pain | Current use of pain medication, creams, gels or braces. Participation in exercise programmes. | Q | x | Ā | Ā | Ā |