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Table 3 Codes and themes of free-text responsesa with condensed example statements

From: Organisation, influence, and impact of patient advisory boards in rehabilitation institutions—an explorative cross-sectional study

Code

Frequency of codes

Theme

Examples using condensed meaning units

  

Barriers to PEb

 

Screening of information

2

 

“It appears that some information is adapted before made available to everyone.”

Unclear PAB tasks

1

 

“Unclear PAB mandate and role.”

Inaccessible information

3

 

“Reports from PAB should be open to all PAB representatives.”

Exclusion of PABc in institutional activities

13

 

“Pronounced use of hard-to-understand language.”

“Leader of PAB does not have voting rights.”

“Documents only available to employees.”

Resources dedicated to PE

2

 

“No resources are set aside for PAB education.”

Covid 19

5

 

“Not allowed to physically access the institution.”

Total codesd

26

  
  

Facilitating PE

 

Inclusion of PAB in institutional activities

4

 

“Mostly quite open and clear dissemination.”

“In some cases, it has been useful when employees have initiated PAB inclusion.”

Available information

2

 

“Reports are made available from PAB meetings.”

Covid 19

1

 

“Everything worked well and digital meetings have been arranged.”

Independence of PAB

1

 

“PAB has developed its guidelines and helped draw up ethical guidelines.”

Total Codes

8

  
  1. aFree-text answers (N = 30): Q11: practices and policies (n = 5), Q21 participatory culture (n = 7), Q28 Influence and impact (n = 8), Q 31 collaboration and common purpose (n = 3), Q 35 Final thoughts (n = 7)
  2. bPE patient engagement
  3. cPAB Patient advisory board
  4. dTotal codes related to a theme are presented in bold