Skip to main content

Table 1 Participant Characteristics (n = 38)

From: Test–retest reliability for performance-based outcome measures among individuals with arthrogryposis multiplex congenita

Age, ya

20 (14, 33)

Sex, female

27 (71.1)

Ethnicity, Non-Hispanic/Latino

34 (89.5)

Race, white/Caucasian

31 (81.5)

Height, ma

1.56 (1.45, 1.63)

Weight, kg

53.1 (40.8, 62.4)

Known Genetic Cause of AMC

4 (10.5)

Spinal Involvement × 

18 (48.6)

Upper Limb Regions, 0-8a

8 (4, 8)

Lower Limb Regions, 0-6a

5 (3, 6)

ASSISTIVE TECHNOLOGY

Lower Limb Orthotics Use

22 (57.9)

Home Assistive Device Use

1 (2.6)

Cane

1 (2.6)

Community Assistive Device Use

11 (28.9)

Cane

3 (7.9)

Loftstrand Crutches

2 (5.3)

Rollator Walker

1 (2.6)

Wheelchair

5 (13.2)

Spinal

6 (15.8)

Number of Upper Limba

0 (0, 3)

Number of Lower Limba

4 (2, 7)

GFAQa

9 (8, 9)

7-day Average Pain Rating, 0-10a

3 (1, 4)

  1. aData presented as median (25th, 75th percentile) rather than n (% of sample)
  2. Xn = 1 participant with missing data
  3. βn = 2 participants with missing data
  4. upper-limb regions included right and left shoulder, elbows, wrists, and hands
  5. lower-limb regions included right and left hips, knees, and ankle/foot complex
  6. Abbreviations: GFAQ Gillette Functional Assessment Questionnaire, y years