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Table 1 The British VLAs Socio-demographic Characteristics of Participants [Phase 2 – T1]

From: The Valued Life Activities Scale (VLAs): linguistic validation, cultural adaptation and psychometric testing in people with rheumatic and musculoskeletal diseases in the UK

  AS (n = 165) OA (n = 184) SLE (n = 164) SS (n = 170) CP/FM (n = 194) CH/UL (n = 158) PSS (n = 171) RA (n = 340)
Response Rate (%) 79 80 89 88 77 73 88 80
Age (Mean (SD)) 53.48 (13.89) 63.28 (10.41) 53.20 (13.22) 65.52 (10.65) 53.10 (13.47) 54.66 (14.13) 62.88 (11.25) 61.96 (12.09)
Gender (M: F) 118:45 41:143 7:157 12:158 24:170 48:109 10:160 89:251
Recruited from:
NHS: Patient Organisation
120:45 184:0 40:124 38:132 88:106 122:36 104:67  
Condition duration in years (Mean (SD): 24.75 (15.16) 10.43 (10.24) 18.22 (11.54) 16.67 (11.15) 12.96 11.62) 6.0 (12.34) 16.44 (17.04) 14.44 (11.73)
Marital status: n (%):
 Single/Divorced/Widowed 38 (33%) 46 (25%) 31 (19%) 58 (34%) 58 (30%) 42 (26%) 54 (32%) 94 (28%)
 Married/Living with partner 126 (77%) 136 (74%) 133 (81%) 111 (66%) 136 (70%) 115 (74%) 117 (68%) 241 (71%)
 Missing 1 (0.0%) 2 (0.0%) 0 1 (0.0%) 0 1 (0.0%) 0 5 (1%)
Living status: n (%)
 Alone 26 (16%) 43 (23%) 17 (10%) 52 (30%) 38(20%) 36 (24%) 47 (28%) 70 (21%)
 Family/Significant other 134 (81%) 133 (73%) 143 (87%) 115 (68%) 145 (75%) 113 (71%) 121 (71%) 245 (72%)
 Missing 5 (3%) 8 (4%) 9 (3%) 3 (2%) 11 (5%) 8 (5%) 3 (1%) 25 (7%)
Children living at home n (%): 41 (25%) 12 (7%) 28 (17%) 3 (2%) 47 (24%) 24 (15%) 17 (10%) 36 (10.5)
Employment status:
 Paid employment 87 (53%) 56 (30%) 62 (38%) 38 (22%) 70 (36%) 80 (51%) 64 (38%) 108 (32%)
 Long term sick leave 7 (4%) 5 (3%) 9 (6%) 2 (1%) 14 (7%) 10 (6%) 2 (1%) 9 (2%)
 Early retired ill-health 19 (12%) 13 (7%) 31 (19%) 29 (17%) 30 (16%) 10 (6%) 16 (10%) 35 (10%)
 Unemployed 5 (3%) 3 (2%) 1 (1%) 1 (1%) 16 (8%) 4 (3%) 2 (1%) 4 (1%)
 Retired 41 (25%) 103 (57%) 44 (26%) 95 (56%) 38 (26%) 44 (28%) 82 (48%) 169 (50%)
 Homemaker 5 (3%) 2 (1%) 14 (9%) 4 (2%) 21 (11%) 6 (4%) 3 (2%) 8 (2%)
 Student 0 0 2 (1%) 0 3 (1%) 1 (0.0%) 0 1 (0.0%)
 Missing 1 (0.0%) 2 (0.0%) 1 (0.0%) 1 (0.0%) 2 (0.0%) 3 (0.0%) 1 (0.0%) 5 (1%)
Education level (ISCED):
 Level 1: Compulsory school 19 (12%) 47 (25%) 16 (10%) 23 (13%) 20 (10%) 23 (15%) 22 (13%) 78 (23%)
 Level 2: Secondary 1st stage 22 (14%) 43 (23%) 40 (24%) 37 (22%) 45 (23%) 22 (14%) 39 (23%) 82 (24%)
 Level 3: Secondary second 15 (9%) 7 (4%) 20 (12%) 20 (12%) 14 (7%) 16 (10%) 14 (8%) 22 (6%)
 Level 4: Post-secondary 37 (22%) 23 (13%) 18 (11%) 18 (10%) 26 (14%) 19 (12%) 28 (16%) 51 (15%)
 Level 5: Tertiary 63 (38%) 46 (25%) 69 (42%) 66 (39%) 81 (42%) 69 (44%) 62 (36%) 90 (26%)
 Other 2 (1%) 0 0 0 0 0 0 0
 Missing 7 (4%) 18 (10%) 1 (1%) 6 (4%) 8 (4%) 8 (5%) 6 (4%) 17 (5%)
Current medication:
 Not on DMARDs 89 (54%) n/a 56 (34%) 143 (84%) n/a n/a 113 (66%)  
 Monotherapy 11 (7%)   76 (46%) 25 (15%)    52 (31%)  
 Combination therapy 0   29 (18%) 2 (1%)    2 (1%)  
 Biologic drugs 65 (39%)   3 (2%) 0    2 (1%)  
 Missing 0   0 0    2 (1%)  
  1. Key: AS Ankylosing spondylitis; OA Osteoarthritis; SLE Systemic Lupus Erythematosus; SS Systemic Sclerosis; CP/FM Chronic Pain/ Fibromyalgia;
  2. CHUL chronic hand/upper limb conditions; PSS Primary Sjorgens Syndrome; RA Rheumatoid Arthritis; ISCED International Standard Classification of Education; DMARDs Disease Modifying Anti-Rheumatic Drugs