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Table 1 Sample characteristics of JIA patient sample (n = 23, SD in brackets)

From: Socioeconomic costs and health-related quality of life in juvenile idiopathic arthritis: a cost-of-illness study in the United Kingdom

Average age (years)  
 All patients (n = 23) 21.4 (16.8)
 Adult patients (n = 10) 38.5 (9.8)
 Adolescent patients (n = 13) 8.3 (3.8)
Average diagnosis age (years)  
 All patients (n = 23) 5.2 (4.4)
 Adult patients (n = 10) 5.9 (5.2)
 Adolescent patients (n = 13) 4.6 (3.9)
Sex  
 Male 21.7 %
 Female 78.3 %
Disease subtype  
 Systemic-onset juvenile arthritis (Still’s disease) 30.4 %
 Oligoarticular arthritis 26.1 %
 Rheumatoid factor-positive polyarthritis 17.4 %
 Rheumatoid factor-negative polyarthritis 8.7 %
 Enthesitis-related arthritis (spondylarthropathies) 4.3 %
 Juvenile psoriatic arthritis 4.3 %
 Unclassified types 8.7 %
Is there a caregiver?  
 Yes (n = 10) 43.5 %
 No (n = 13) 56.5 %
Average age of (principal) caregiver (years) 43.1 (9.7)
Average informal care hours per week (whole sample) 11.8 (29.1)
Average informal care hours per week (if there is a caregiver) 20.3 (23.6)
Health Related Quality of Life (Visual Analog Scale)  
 Adult JIA patients (n = 10) 49.00 (12.43)
Visual Analog Scale score for general population a 86.56 (13.79)
 Main Caregivers for JIA patients (n = 7) 67.14 (26.12)
Visual Analog Scale score for general population b 86.56 (13.79)
Health Related Quality of Life (EQ-5D index score)  
 Adult JIA patients (n = 10) 0.262 (0.239)
EQ-5D index score for general population a 0.91 (0.16)
 Main Caregivers for JIA patients (n = 7) 0.663 (0.367)
EQ-5D index score for general population b 0.91 (0.16)
Average Barthel Index (n = 17) 16.2 (3.6)
Average Zarit scale (n = 8) 22.9 (6.6)
  1. aReflects general population social tariffs/utilities for the respective patients’ age group (i.e. 35–44)
  2. bReflects general population social tariffs/utilities for the respective caregivers’ age group (i.e. 35–44)