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Table 1 MAPLe-RA questionnaire

From: Psychometric properties of a new treatment expectation scale in rheumatoid arthritis: an application of item response theory

A. The Physical domain (physical impact of RA): with the new treatment, I expect:
Q1: The swelling of the joints to be Much better Better Same Worse Much Worse non-applicable
Q2: The pain to be Much better Better Same Worse Much Worse non-applicable
Q3: My morning stiffness to be Much better Better Same Worse Much Worse non-applicable
Q4: My mobility to be Much better Better Same Worse Much Worse non-applicable
Q5: My fatigue to be Much better Better Same Worse Much Worse non-applicable
Q6: The visible signs of RA (e.g. deformities on my hands) to be Much better Better Same Worse Much Worse non-applicable
Q7: The joint damage to be caused by RA Much better Better Same Worse Much Worse non-applicable
Questions for physical domain are coded from 5 = Much better to 0 = non-applicable; overall score for the physical domain ranges between 0 and 35.
B. The Psycho-social domain (emotional wellbeing and social aspects of RA): with the new treatment, I expect:
Q1: To be able to maintain my independence (e.g. not needing to ask for help making tea) Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Q2: Improvements in my general health in order for me to be able to go back to work and/ or stay in salaried employment: (Please tick here if not applicable) Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Q3: My everyday activities (e.g. shopping) to be facilitated: Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Q4: To feel in control of my RA self manage (e.g. diet)/ cope (e.g. frustration) alongside medical treatment Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Q5: To be able to maintain my social roles (e.g. supporting family/going out with friends) Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Q6: My emotional wellbeing (e.g. mood) to be Much more than usual More than usual Same Worse than usual Much worse than usual non-applicable
Questions for the Psycho-social domain are coded from 5 = Much more than usual to 0 = non-applicable; overall score for the psycho-social domain range between 0 and 30.
C. Impact of new Treatment (Overall Expectations on Impact of Treatment (care delivery)): with the new treatment I expect it:
Q1: To make me feel better overall despite side effects Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q2: To reduce the likelihood of surgery Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q3: To prevent other physical complications Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q4: To come with detailed information from the medical staff: Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q5: To allow me to be involved in the treatment decision making with the clinical staff Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q6: To include regular physical (e.g. hands and feet) assessments Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q7: To include regular emotional wellbeing assessments Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Q8: To allow me to not have to change medication so often Strongly Agree Agree Neither Agree nor Disagree Disagree Strongly Disagree non-applicable
Questions for the impact of new treatment are coded from 5 = strongly agree to 0 = non-applicable; overall score for the impact of new treatment scores range between 0 and 40.
  1. Computing and interpreting the MAPLe-RA score
  2. There are two steps in computing the overall score of MAPLe-RA
  3. 1. Sum the scores for each domain
  4. 2. Sum the scores for all the domains. This yields a MAPLe-RA score ranging between 0 and 105. The highest score representing high expectations of new treatment and vice versa
  5. Non-applicable response category refers to patients who are not newly diagnosed with RA or not changing treatment