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Table 3 Key emergent themes from the interviews and focus groups

From: Understanding the information needs of women with rheumatoid arthritis concerning pregnancy, post-natal care and early parenting: A mixed-methods study

Theme

Description

Lack of specific information regarding the pregnancy and post-natal periods

• Perceived lack of consumer-focused written information relating specifically to RA and pregnancy, the post-natal period and early parenting

• Perception that the needs of younger people with arthritis are not well addressed

Information needs are dependent on the individual situation

• Difficulty of knowing what specific information will be needed given the variability in how RA can be affected by pregnancy

• Information needs vary according to maternal stage and educational or professional background

Rheumatologist as the primary information source

• Expressed trust in rheumatologists who provide individuals with most of the information relating to RA and pregnancy

Identified information gaps

• Four main subthemes were identified in relation to information gaps:

 • drug toxicity

 • physical and emotional support services

 • practical tips and strategies to assist in coping with daily challenges

 • information for family, friends and the workplace

Accessible information through electronic formats

• Clear preference for written information which can be made available via electronic formats and updated regularly to maintain relevance

Arthritis consumer organisations as a resource hub

• Role of organisations should be to:

 • collate and provide access to up-to-date, evidence-based information

 • provide a referral system to support services and facilitate peer support groups

 • provide RA-related education and training to upskill health professionals commonly encountered by women during this life stage