Theme | Description |
---|---|
Lack of specific information regarding the pregnancy and post-natal periods | • Perceived lack of consumer-focused written information relating specifically to RA and pregnancy, the post-natal period and early parenting |
• Perception that the needs of younger people with arthritis are not well addressed | |
Information needs are dependent on the individual situation | • Difficulty of knowing what specific information will be needed given the variability in how RA can be affected by pregnancy |
• Information needs vary according to maternal stage and educational or professional background | |
Rheumatologist as the primary information source | • Expressed trust in rheumatologists who provide individuals with most of the information relating to RA and pregnancy |
Identified information gaps | • Four main subthemes were identified in relation to information gaps: |
• drug toxicity | |
• physical and emotional support services | |
• practical tips and strategies to assist in coping with daily challenges | |
• information for family, friends and the workplace | |
Accessible information through electronic formats | • Clear preference for written information which can be made available via electronic formats and updated regularly to maintain relevance |
Arthritis consumer organisations as a resource hub | • Role of organisations should be to: |
• collate and provide access to up-to-date, evidence-based information | |
• provide a referral system to support services and facilitate peer support groups | |
• provide RA-related education and training to upskill health professionals commonly encountered by women during this life stage |