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Table 3 By-factor ranking of statements given in the Daily Life Q-study

From: A Q-methodology study of flare help-seeking behaviours and different experiences of daily life in rheumatoid arthritis

 

Factor scores

Living with RA day by day means…

Factor A+

Factor B+

Factor B-

Factor C-

D1: I sometimes have to cancel plans due to my RA

0

0

0

1

D2: Being more spontaneous with life

-1

+3

-3

+1

D3: Struggling to do certain things

+1

-2

+2

0

D4: Choosing my clothes according to how easy they will be to put on and take off

+1

+2

-2

-4

D5: I am unable to predict how bad my symptoms will be each day

-1

-3

+3

+1

D6: Taking longer to get things done than I think it should

+2

-2

+2

-2

D7: Finding different ways of doing the things I want to

+4

0

0

+2

D8: Giving myself permission to leave a task half finished

+1

0

0

-1

D9: Using tools or devices to aid me in daily tasks

+3

+1

-1

-5

D10: Finding a balance between asking for help and remaining independent

+2

-1

+1

0

D11: Doing what I want to do regardless of the consequences

-3

+2

-2

-1

D12: Choosing to prioritise pleasurable activities against chores

0

+2

-2

-2

D13: Not letting my RA get me down

+3

+3

-3

+4

D14: Relying on support from my family/friends/others

0

0

0

-3

D15: Talking to other people with RA who are similar to me helps

-1

+1

-1

-1

D16: Using alternative medicines/therapies to manage my RA symptoms

-4

+3

-3

0

D17: Distracting myself from my symptoms

+2

+1

-1

0

D18: Trying not to eat certain foods

-4

+4

-4

-3

D19: I am cautious of gaining weight and putting extra stress on my joints

-1

0

0

+3

D20: Exercising as much as I can

+1

+5

-5

+2

D21: Making small adjustments to my day or activities constantly because of my RA

+5

-1

+1

0

D22: Taking my medication exactly as prescribed

+3

+1

-1

+2

D23: Planning rest time into my week

+2

+1

-1

-3

D24: Feeling lucky in comparison to other people

-1

+2

-2

+5

D25: I have periods of being completely symptom free

-3

+4

-4

-2

D26: Dealing with the severity of my symptoms going up and down

+1

0

0

+1

D27: Getting frustrated due to my RA

-2

-3

+3

+2

D28: Feeling guilty about holding others back due to my RA

-2

-1

+1

-4

D29: Feeling that my body has let me down

-2

-1

+1

0

D30: Trying to forget that I have RA

0

+1

-1

+3

D31: Worrying because of my RA

-2

-3

+3

0

D32: Repetitive tasks make my RA symptoms worse

0

-2

+2

-1

D33: Being determined not to allow my RA to interfere with my responsibilities

+4

0

0

+4

D34: Being angry because of my RA

-5

-5

+5

-2

D35: Experiencing unexplainable fatigue/exhaustion daily

+1

-4

+4

+3

D36: Experiencing pain daily

0

-4

+4

+1

D37: Experiencing swelling daily

-1

-1

+1

-1

D38: Experiencing stiffness daily

0

-2

+2

+1

D39: Struggling to explain to family and friends what life is like for me

-3

-1

+1

-1

  1. Statements highlighted in bold text show that consensus on the average score was reached across the factors Reading the table by column shows the comparative ranking of statements that characterise a particular factor. Reading the table by row shows the comparative ranking of a particular statement across factors.