Table 3 Summary of measures to be collected
Data collection instrument and scale | Time points | |
|---|---|---|
Primary outcome measure: | ||
Goal attainment and health related quality of life | Patient generated Index (PGI) 0–100, 0 is good health | t1, t2, t3, t4, |
Secondary outcome measures: | ||
Health related quality of life | Medical Outcome Study Short Form-36 (SF-36), 0–100, 100 is good health | t1, t2, t3, t4, |
Pain | Numeric rating scale: 0–10, 0 is no pain | t1, t2, t3, t4, |
Fatigue | Numeric rating scale: 0–10, 0 is no fatigue | t1, t2, t3, t4, |
Global assessment of disease activity | Numeric rating scale: 0–10, 0 is no disease activity | t1, t2, t3, t4, |
Motivation for change | Numeric rating scale: 0–10, 0 is no motivation | t1, t2, t3, t4, |
Self efficacy pain | The Arthritis Self-Efficacy Scale (ASES) for pain, 1–5, 1 is low self-efficacy | t1, t2, t3, t4, |
Self efficacy symptoms | The Arthritis Self-Efficacy Scale (ASES) for symptoms, 1–5, 1 is low self-efficacy | t1, t2, t3, t4, |
Cost-effectiveness: | ||
Utility | SF6D utility index, 0.29–1.00, 1.00 is full health | t1, t2, t3, t4, |
Sick leave and absence from work past six months | Number of days | t3, t4, |
Health care utilisation past six months | Number of visits and/or hospital stays | t3, t4, |
Use of medication | Name and dosage of medicine | t1, t2, t3, t4, |
Medical or technical equipment past six months | Type and costs of equipment purchased | t3, t4, |
Paid and unpaid help past six months | Costs and number of days and hours, | t3, t4, |
Costs related to the rehabilitation stay | Costs pr day at each rehabilitation centre x number of days | t2 |
Other measures | ||
Age | Years | t1 |
Gender | Female/male | t1 |
Height | Centimetres | t1 |
Weight | Kilo | t1 |
Marital status | Living alone or not | t1 |
Employment status | Working full time/working part time/not working/student/working full time in the home/unemployed or seeking work/age retired/disability pension/sick leave | t1 |
Level of education | 7-10 years of education, 10–12 years of education, more than 12 years of education | t1 |
Comorbidity | Presence of 16 diseases/health problems (yes/no) | t1 |
Level of exercising | 3 times pr week, 1–2 times pr week, 1–2 times pr month, not on a regular basis, or I can not exercise or be social active due to functional limitations | t1 |
Physical and social activity | 3 times pr week, 1–2 times pr week, 1–2 times pr month, not on a regular basis, or I can not exercise or be social active due to functional limitations | t1, t2, t3, t4 |
Physical activity | International Physical Activity Questionnaire-Short Form, IPAQ, mean minutes/week of, vigorous-intensity activity, moderate-intensity activity, walking, and sitting | t1, t2, t3, t4 |
Illness perception | Rheumatic Disease Illness Perception Questionnaire, 1 to 5, 1 is “not at all” | t1, t2, t3, t4 |