Content | Measurement point | Scale | Reference | Example item | Scale range | Cronbach’s alpha a | Items | Response options |
---|---|---|---|---|---|---|---|---|
Depression | Intake, T0, T1, T4 | Hospital Anxiety and Depression Scale (HADS) | Zigmond & Snaith, 1983 [60] | I have lost interest in my appearance. | 0-21 | .81 | 7 | various response format (0–3) |
Anxiety | Intake, T0, T1, T4 | HADS | Zigmond & Snaith, 1983 | I feel tense or wound up. | 0-21 | .83 | 7 | various response format (0–3) |
Positive affect | T0, T1, T4 | Positive subscale of the Positive and Negative Affect Schedule (PANAS) | Watson, Clark, & Tellegen, 1988 [67] | Rate how you felt during the past week: e.g., attentive, interested. | 10-50 | .92 | 10 | very slightly or not at all (1) - very much (5) |
Purpose in life | T0, T1, T4 | Purpose In Life scale (PIL) | My daily activities often seem trivial and unimportant to me. | 6-30 | .82 | 6 | strongly disagree (1) -strongly agree (5) | |
Social participation | T0, T1, T4 | Family role, autonomy outdoors, social relations and work and education subscales of the Impact on Participation and Autonomy (IPA) questionnaire | Cardol, De Haan, De Jong, Van den Bos, & De Groot, 2001 [70] | Domain autonomy outdoors: The possibility to spend my (spare) time like I want to is… | 0-4 | .76 | 25 | very good (0) - very poor (4) |
Pain | T0, T1, T4 | 1 item with 100 mm visual analogue scale | - | Please indicate how much pain you had in the last 7 days due to your condition? | 0-100 | - | 1 | no pain at all (0) -unbearable pain (100) |
Fatigue | T0, T1, T4 | 1 item with 100 mm visual analogue scale | - | Please indicate your level of fatigue averaged over the past 7 days? | 0-100 | - | 1 | no fatigue (0) -completely exhausted (100) |
Physical functioning | T0, T1, T4 | RAND-36 physical function subscale | Ware & Sherbourne, 1992 [71]; Van der Zee & Sanderman, 2012 [72] | Does your health limit you in these activities? If so, how much? E.g., Walking a half mile. | 10-30 | - | 10 | Yes, limited a lot (1) – No, not limited at all (3) |
Goal maintenance | T0, T1, T4 | Tenacious Goal Pursuit (TGP) | Brandtstädter & Renner, 1990 [73] | When faced with difficulties, I usually double my efforts. | 15-75 | .73 | 15 | strongly disagree (1) -strongly agree (5) |
Goal adjustment | T0, T1, T4 | Flexible Goal Adjustment Scale (FGA) | Brandtstädter & Renner, 1990 | I adapt quite easily to changes in plans or circumstances. | 15-75 | .79 | 15 | strongly disagree (1) -strongly agree (5) |
Goal disengagement | T0, T1, T4 | Goal Adjustment Scale | Wrosch, Scheier, Miller, et al., 2003 [42] | If I have to stop pursuing an important goal in my life, it’s easy for me to reduce my effort towards a goal. | 4-20 | .53 | 4 | strongly disagree (1) -strongly agree (5) |
Goal reengagement | T0, T1, T4 | Goal Adjustment Scale | Wrosch, Scheier, Miller, et al., 2003 | If I have to stop pursuing an important goal in my life, I seek other meaningful goals. | 6-30 | .88 | 6 | strongly disagree (1) -strongly agree (5) |
Goal management strategies | T0, T1, T4 | Goal Management Strategy Vignettes (GMSV) |  | See article’s text | - | - | - | Open ended |
Coping versatility | T0, T1, T4 | Coping Flexibility Questionnaire (COFLEX) | Vriezekolk, Van Lankveld, Eijsbouts, Van Helmond, Geenen, & Van den Ende, 2012 [51] | I can easily change my approach if necessary. | 9-36 | - | 9 | rarely or never (1) –almost always (4) |
Self-efficacy pain | T0, T1, T4 | Arthritis Self-Efficacy Scale | Lorig, et al., 1989 [30] | I am certain that I can keep arthritis pain from interfering with my sleep. | 1-5 | .83 | 5 | strongly disagree (1) -strongly agree (5) |
Self-efficacy for other symptoms | T0, T1, T4 | Arthritis Self-Efficacy Scale | Lorig, et al., 1989 | I am certain that I can control my fatigue. | 1-5 | .82 | 6 | strongly disagree (1) -strongly agree (5) |
Demographics | T0 | Sex, age, marital status, education and current state of employment | - | - | - | N.A. | 6 | various response format |
Disease characteristics | T0 | Diagnosis and disease duration | - | - | - | N.A. | 2 | Various response format |
Co-morbidities | T0 | Checklist with 15 categories of conditions b | Based on the International Classification of Diseases (ICD-10: WHO, 1992) | - | 0-16 | N.A. | 16 | - |
Medication use | T0, T1, T2, T3, T4 | - | - | See article’s text | N.A. | N.A. | 2 | See text |
Utilities | T0, T1, T4 | EQ-5D | Brooks, 1996 [74]; Lamers, McDonnell, Stalmeier, Krabbe, & Busschbach, 2006 [75] | I have no problems in walking about. | 1-3 | - | 15 | No problem (1) - extreme problems (3) |
Direct medical costs | T0, T1, T2, T3, T4 | - | - | See article’s text | N.A. | N.A. | 3 | Open ended |
Indirect non-medical costs | T0, T1, T2, T3, T4 | - | - | See article’s text | N.A. | N.A. | 7 | Open ended |
Price estimate | T1 | - | - | See article’s text | N.A. | N.A. | 1 | In euros for de complete course |